Bleh

I think the worst of the nerve medication withdrawals are over.   But it’s hard to say.   What I can say is this isn’t anything like going through opioid detox.   That’s nasty.   Very nasty.   I’ve done that twice before and it takes weeks and weeks for your system to reset after being on sustained doses of narcotics for over a year.   But even so, this isn’t fun.

I’ve been eight days now without any nerve medication.   It’s hard to tell what is nerve pain I’m stuck with and what’s rebound pain from being on nerve medication for a long time.   I’ve decreased the dosage appropriately and now I’m on none.   So what’s the real pain and what’s rebound pain?  I don’t think I can say yet.  

I feel a general sense of malaise along with pain.   I deal with pain all the time, but in this case, the medication that makes the pain better is the thing I’m stopping.  So I just have to tough it out and see what my baseline is on the other side.   I’m dealing more with lack of appetite and lack of energy, which isn’t helpful when there are young children around who need you to be available to help them with all manner of things like, “where is my bike helmet?” and six rounds of drops per day and “get your pajamas on now, for the third time, it’s past bedtime”.  That sort of thing, only all day.

Fortunately today was the first day of school for my son, so both children are not home during the day and I’ve gotten some rest.   Things are better than they were though, which is a good sign for tomorrow and the next day. 

The Big Boy Update:  My son got dressed up in costume after school today.   He decided to be a villain or something and made jagged cut marks on his face and arms in—wait for it—red sharpie.   It looks pretty convincing for entry level scarification makeup.   Getting it off for school tomorrow might be a trick though.

The Tiny Girl Chronicles:  My daughter came home saying, “WORST…DAY…EVER!”  It would appear she missed her entire time in the VI room to be with her Orientation and Mobility teacher, whom she typically enjoys seeing.   Her new VI teacher has made quite an impression on her and I think she loves doing work with her so much she didn’t want to miss a day.   She also gets chocolate if she meets a challenge or wins a game—and my daughter is very chocolate driven.  I got a note home that we need to get a 38” cane because my daughter has grown and her 36” canes are too short. This is always fun because you can order them with all sorts of colors.