Thursday, December 15, 2016

Office Visit Notes

I thought there would be some sort of revelation in the information my husband heard from my daughter’s follow-up visit to Dr. Trese post-surgery.  It was mostly because we had come up with all these questions and had hoped it would give some clarity on who, what, when where or I guess really only ‘why’.

What was that tissue he removed from her eye and where was it?  It was some lens capsule, but it was also some scar tissue that grew.   He thinks at some point she had a moderate sized bleed from the vessels in the iris and that organized into a scar.   He thinks more scar tissue could forming the future,  which is less likely to happen is she doesn’t bump her eye and cause another bleed.  

Asking this child to not bump into things is a hard task if you imagine it.   She is blind and she runs into things a lot.   She wears glasses and her eyes are usually protected, but we can’t over protect her and limit her life too much.   For now, we’re keeping her reasonably protected while the eye heals from surgery.

He thought the dot of blood in the front of her eye had already resolved from the surgery the day before, which is good news.  

What about the blood vessels in her retina?  He said she had less than normal and they were abnormally small.   He commented that her circulation is not extremely prominent, but she obviously has function, so the retina is oxygenated.   The vessels in her left eye show better circulation, but he can’t see it now because of the cataract.

We’ll know more at Tuesday’s recheck in his office.   Maybe I’ll get to see some snow since it’s my turn to visit Detroit.

The Big Boy Update:  My son is super excited about his Harry Potter birthday party on Sunday.   My husband made Quiddich hoops in the back yard using hula hoops and stakes and we’re hoping for no rain so the children can run outside and make up some rules with balls and hoops and wands.  

The Tiny Girl Chronicles:  My daughter is light-sensitive, but not 100% of the time.   I think she’s keeping the eye rolled upwards or not using it that much and then suddenly when she does use it, she gets light overwhelmed.   I really hope this is a good sign.

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