It’s time to do one of those “fly a long way for a short office visit” trips. My husband and daughter flew to Detroit from Florida to be seen today by her Retina surgeon. Below are the notes my husband sent about the appointment. Since things looked like they were doing well, most of the talk was about his plan going forward:
Dr. Trese examined her in his office and commented that there was a very good orange reflex in the right eye indicating a reattached retina. The cornea was clear which is a good sign that the oil and PFO has not caused any clouding.
He said that the fact that she is sensitive to light and wants to wear her sunglasses is good and the retina is receiving information. Her eyes not tracking together is normal when the two eyes are seeing different things. He was not worried about that.
He did not see anything acute that would worry him, such as high or low pressure (visually), infection, or any other problems so he said he would like to schedule an EUA on May 2nd with a possible angiogram and Healon injection if the pressure is low. He will not remove the PFO (not hurting her and would require more than an EUA).
He now thinks that it is time to get a refraction during the EUA and the process for restoring vision would follow with her ophthalmologist. He will be seeing her ophthalmologist later this month at a conference and they have been in communication regularly.
He would like to keep her eye drops the same as they are now--atropine twice daily and Predisolone four times (or Durezol 3 times).
When asked about the silicone oil and long term worries he said that it could cause corneal clouding or high pressure. Her cornea looks clear and higher pressure would actually help in her case. He said that people can tolerate the oil for a long, long, long time.
The Big Boy Update: My son told me the other day, “Quai got Jin always wears brown pants.” He pays attention to all the Star Wars details, folks.
The Tiny Girl Chronicles: InUnConsolable. I’ve made up a new word. It reflects how my daughter was feeling in her tired state tonight when she got home from Detroit. She was cranky, uncooperative, angry, irritable, whiny, screaming, complaining and seven or nine other adverbs all rolled into one. She was inconsolable and uncooperative. She has finally fallen asleep. I hope she’s in a better mood in the morning.
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