Friday, July 7, 2017

Getting the Puff Out

Back in time, around when my daughter lost her vision, my daughter had a lot of very large bumps on her butt.  (I’m not going to say backside or fanny or fundament or any of those other words because we just call it their ‘butt’ in our house).   Every time we’d talk to a doctor they’d ask a lot of questions, one of them being did she have any rashes.   And at the time she was wetting her pants because she didn’t want to take a break from what she was doing to go to the bathroom.   Doing that frequently gave her a mild rash but mixed in with the rash were these hard, large lumps.

This went on for a while with them getting bigger and then smaller and then new ones appearing.   Eventually we went to a pediatric dermatologist who didn’t know what they were, nor did her associate so they sent us to a specialist.   Fortunately, we’d already been seen by that specialist when my daughter had her full workup when she was admitted after the initial EUA when we found out her retinas were detached and the host of other mess was going on with her eyes.

Two biopsies later we found out she was having abscesses—deep abscesses—but we still didn’t know why.   She was put on an antibiotic to help them resolve because, get this, the abscess material they extracted didn’t culture into anything specific, which might have just been how the sample was handled or a host of other reasons.   Since the punch biopsy procedure had been done to her twice, both times with her in terror causing us to need six people in the room to hold her down (mind you, she’d been numbed, but still, trauma is trauma) we all thought going for a third round just wasn’t worth it.

The antibiotics resolved them and since that time we’ve only had one other incident on her leg.   One day after weeks of this thing on her leg looking like it needed to be lanced as it was close to the surface, I told my daughter we had to do something.   She probably hated me for the rest of the hour (she recovers quickly) and I was able to break through the surface fairly easily with the result being oozing brown liquid coming out.    That particular abscess healed but because it was there for so long she has a scar in the spot still.

Since that time over a year ago nothing has happened.   Until my husband noticed something, again on her leg, this morning.   I woke up to my daughter screaming.   I don’t know that she was in pain so much as the fear of pain—of being ‘poinked’ as she calls it.   My husband got the spot open and applied a bandaid.  

When I got up my daughter told me dad had, “gotten the puff out of my knee”.   Hopefully that’s all the ‘puff’ we’ll encounter and there won’t be a return of the abscesses.   When she had them all over her butt it was uncomfortable for her to sit and she wouldn’t let any of us get near her to look at them.  

The Big Boy Update:  My son has been very interested in Mine Craft.  My husband has fixed it so my son can turn on the Xbox and talk to the speaker to get Mine Craft started.   I’ve got to tell you, he’s pretty creative and has built some interesting things.    My father-in-law was visiting over the holiday and was asking my son what he was doing.   Papa said, “I don’t know how to do  Mine Craft.”  My son replied, “c’mon, it’s the same as when you were a kid.”

The Tiny Girl Chronicles:  My daughter came into the room this morning and I told her about something—I can’t even remember what it was I told her now.   She said, “yeah, that happened to me too…only it didn’t.  It was something else.”

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