Breathe

My sister-in-law gave me a necklace for Christmas.   She had texted me earlier in the month asking me what my favorite word was and I replied, “anything but the word ‘awesome’”.   She picked ‘breathe’ because she likely guessed I needed to take a step back and just breath sometimes.

It’s hard dealing with my daughter’s eye situation.   It’s hard on her, it’s hard on her brother and it’s hard on us, as her parents, to not know if she’ll lose more vision or if through a lot of drops, hospital visits, surgeries, glasses, lenses, etc. be able to function as a seeing member of our society.    It’s a lot of unknowns.

It’s not only hard for my husband and me, it’s hard for the grandparents, aunts, uncles and everyone who counts my daughter as someone special to them.   We’re all struggling with the implications and the grief of what may be lost or the pain of having to go through so much medically to just try and be as close to normal as possible.  

It’s good to breathe and know things will turn out some way and that way will be supported by us all.

The Big Boy Update:  My son was eating some Star Wars Jelly Bellies today.   I don’t know what transpired between him and my husband but from the kitchen I heard him say, “they taste like storm troopers.”

The Tiny Girl Chronicles:  On the sad front, my daughter wanted to take a turn on the scooter yesterday.   I told her she could have a turn when her brother was finished.   We’ve had that rule in place for as long as they remember, but this time she said mournfully, “but I won’t know where the scooter is when he’s done.”   I told her I would show her where her brother left it.