Back to Blue?

I don’t have much new to report about my daughter’s eyes today other than to say if you were around her and didn’t know she was visually impaired right now, you wouldn’t know.   She got her helmet on by herself, pulled her balance bike out of the driveway and then biked up and down the street, stopping in time, just in front of us as she biked past.   She did this again and again, and even I wondered if she had her full visual capabilities she was so aware of her surroundings.    

But one question about what you’re holding in your hand or can she tell you where the dog is in the yard and you realize very quickly she has no ability to discern details eighteen inches away.   Her ability to navigate in her environment and accommodate to her vision changes has been impressive.   She knows she can’t see well, but she’s working through it. 

I’ve talked about the future for her vision and how there is no indication that as of today we can’t get her vision back.   However, I have been warned about one thing, and that is the appearance of her eyes.   When we noticed a change in her pupils two-and-a-half weeks ago, it was the start of some significant changes in the appearance of her eyes. 

Today, her pupils are not round.   The left eye pupil is not completely dilated, even with the dilation drops.   Her right eye is almost completely dilated, but what we can see isn’t round.    The other change is the color.   Her eyes were a light blue before, now they’re a drab grey with a hint of blue.  

Two eye doctors have told us the least of their concerns is the visual appearance of her eyes and that her visual ability is what they’re most concerned about.   We agree completely.   But, they’ve warned us, what has happened has caused scaring in her eyes and we may need to be prepared for her eyes to never be blue again and her pupils may not return to circular.   They may not fully dilate either. 

It’s so hard to tell right now because of the dilation drops and the irritation in her eyes due to the drops and injections they’ve given her.   Her eyes have also been irritated in part from the retractors used to evaluate her eyes.    She’s not been bothered by any of it, which has been a good thing. 

The Big Boy Update:  My son told us the other day (out of the blue) that he wanted for his birthday a chocolate warrior cake.   His birthday is in December.   It would seem he’s planning ahead.

The Tiny Girl Chronicles:  My daughter has decided when you’re in a large, open lobby in a building you need to be quiet.   She will shush you. telling you to be quiet.   I wonder if it’s because she’s more aware of sound and she can’t see the open space, but she can hear it?

Fitness Update:  Five miles running this morning.  That’s it.  Nothing else exciting happening.