Everyone’s Trying

A lot of emails have gone back and forth today.   The pediatric glaucoma specialist my daughter saw yesterday has been in an email conversation with my husband and me as we discuss how to best proceed with my daughter’s eye situation.   I pulled my daughter’s pediatric ophthalmologist into the chain to have her informed on the situation and to see if she could get in contact with Dr. Trese.

I even called Dr. Trese’s office and left a message with his scheduler, Cat, who knows us after all this time.   Cat doesn’t make Dr. Trese’s schedule, she just coordinates it, but it was the only thing I knew to do to contact his office and see if she could ask about getting us on his schedule.

Then I got an email from Dr. Grace, our pediatric ophthalmologist, who has been our champion so to speak since the very first days when my daughter had the traumatic damage to her malformed eyes from an infection.   Dr. Grace was out of the country.   She was at a conference that Dr. Trese was also at.  

She said he was quite busy (he presents a lot from what I’ve come to understand) but that she was going to speak with him when he had a minute and she what he wanted to do given the latest information on the state of my daughters very delicate and damaged eyes.

I go from feeling lost and out of control, unable to do anything to help my daughter, at the mercy of those who can help to being humbled by the responsiveness of my daughter’s doctors when we need them.   Hopefully we’ll know more soon.   Knowing we may need to take action on her eye to try and save her vision has me on edge, even though there’s no imminent danger and we have time to make any decisions.

The Big Boy Update:  My son got out of school early today (by fifteen minutes) to go see Avengers: End Game with his father and grandfather.   They all enjoyed the movie, although it was interrupted twice by the fire alarm and they had to exit the theater.   Apparently someone kept burning the popcorn.

The Tiny Girl Chronicles:  My daughter went to see Dumbo with Nana today.   She loved it and enjoyed the assistive audio track she could hear with headphones that told her what was happening on the screen.   She came home and had Nana put her hair in pig tails just over her ears so she could have Dumbo ears.