iPad Woes

My daughter is bored.   She is so bored.   She can’t see much at all right now and yes, my husband and I are very frightened for her.   That doesn’t mean we’re not hopeful, but it does make it hard on her and truthfully, us as well because she went from being reasonably capable to capable but hesitant and so very bored.

There are things she likes to do like swing on the swings and play with her neighborhood friends, but we could always give her a break by letting her use her iPad to calm her mind from the visual struggle she’s been going through and hopefully get some reasonable visual information into her head in the case she looses all her vision.

She likes her iPad.   She’s so so on hitting the buttons, but she was able to find small things like the pause button and other items because she new their general proximity on the screen.   In the past week all that’s gone away.  She just can’t see and she’s frustrated and she doesn’t want to just listen to movies or shows.    She tried listening to music on the iPad yesterday but both she and I got frustrated quickly because she wanted to pick the song, was unhappy it wasn’t the song she wanted but couldn’t figure out how to select another song with the very small buttons and screen layout changes that were happening as she clicked around the screen.

Tonight she and my husband are in Detroit.   Tomorrow she goes in for surgery and we will hopefully find out what’s happened to drop her vision so dramatically.    Is it a drop in pressure?  Is the steroid they injected blocking her view?  Or has her retina detached again?   We don’t know but as long as it’s not permanent damage we’re hoping we can get her fractional vision back.  

So more tomorrow when we know more.  

The Big Boy Update:  My son and I were downtown at a street fair today.   He got two presents for his sister and ate more food than I’ve seen him eat in a long time.   On the way home passing through a neighborhood with old buildings he said, “that house is cracked up”.   It was, the brick was cracking and the overall condition of the building was poor.   We talked about how buildings get old just like people do.

The Tiny Girl Chronicles:  My daughter and husband are in Detroit.   It’s nine-thirty at night and they’re on the way to get a Krispy Kreme donut before she has to stop eating until after lunch tomorrow.   She usually doesn’t finish the donut, but she likes the trip and the smells and the friendly people in the store.  Oh, and the paper hat they sometimes give her.