Wednesday, May 31, 2017

Auditory Manicure

Someone gave my daughter a fingernail file some months back.    The file was useful on one side for the purpose of filing nails or other unsuspecting objects with the back side was bedazzled in large pink glitter.    To the casual observer glancing over, looking at my daughter calmly filing her nails with streaks of sunlight refracted around the room from the glittered side, it would appear she knew what she was doing.   But they would be wrong.

My daughter knew I was working on my nails and she knows her nail file in a drawer in the bathroom.   She wanted to get her nail file and do her nails beside me.    I watched her with the file for a few—she knew one side was for decoration and one side was useful and had found the useful side.   But what she did with it was to file against the main body of the nail, not the edge where it’s grown out.    It was a logical, largest area type of thing to go for, and since she couldn’t see what I was doing  she winged it.

I showed her how to file the ends of the nails and told her to listen, that the longer the nail the higher a sound it will make as we file it down.   She got a pretty immediate sense of what that meant and asked me to keep doing her other fingers and then her toes.    When I started on a digit she’d listen and then tell me based on pitch if it was a long or a short nail.

When we were done with her file I asked her if she wanted to use the buffer.   What was the buffer, she asked?  I told her it smoothed things out and showed her how some of her nails were not shorter, but still edgy.

She liked how the buffer made a lower noise on each finger and how it was easy and fast and made everything feel nice and smooth.   We ran out of time and didn’t get to the nail polish stage, which she has planned for tomorrow.

The Big Boy Update:   My son is having some issues with being bossy.   I don’t know if he’s trying to help or trying to be in control but it basically doesn’t work because other children don’t like being told what to do by another authoritative small child.   Some of the time he is actually being very helpful, but a lot of it is so he can get his way.

The Tiny Girl Chronicles:  My daughter decided to climb up on her dresser today.   She found on a tall shelf the snow globe and music box Uncle Jonathan got for them several years ago.   She loved the music and winding it up.   The “snow” is silver glitter so I told her if she went out to the sun she might be able to see the flashes of light in the globe when we shook it up.   Once outside in the hot weather she shook the globe and I asked her if she could see the snow.    Yes, she said, she could see it, but that’s not what she thought was going to happen.  She said in a sad voice, “real snow globes are supposed to make it snow outside!”

Tuesday, May 30, 2017

Another Situation

My children are best friends.  Okay, they’re not.   They’re mortal enemies.   That’s not right either.   I think it’s best said they’re best friend mortal enemies.    Still, let’s not get choosy though, isn’t that the way it is with siblings?

I picked up the children after school today and informed them we’d go to one of their favorite restaurants, Chick-fil-a, for dinner if, and only if, they worked harmoniously together for the remainder of the afternoon.   I was watching them; I was taking notes; dinner was on the line.

To say they were friendly and kind to one another for the remainder of the day would be largely incorrect, but they tried and we did go to dinner, although it was later than I intended because we had visiting children in the house and their parents later on in the back yard.   I didn’t realize our neighbors didn’t know the latest with what had happened to my daughter’s vision so I found myself explaining in a quiet voice off to the side where I hoped my daughter couldn’t hear.

Eventually we extricated ourselves and left everyone else playing on our play structure.   We piled into the car and were on the way to dinner when my daughter and son got into it again.   I raised my voice and told them I could turn around if they were planning on arguing the whole way there.     My son turned to his sister and said to her, “I’m not going to talk anymore, I don’t want to get into another situation”.

The Big Boy Update:   My son asked me this afternoon, “mom, why do I have curly hair?”  I explained in simple terms about genetics and my curly hair.   He said back to me, “I don’t want curly hair”.    I told him he wasn’t the first child who didn’t like the things he’d been handed down.

The Tiny Girl Chronicles:  My daughter likes to play the sound spelling game.   She will say, “mom what does <insert letter sounds here> spell?”   She did a very long one tonight after dinner in the car and I told her I didn’t know what that said because it was so long.   She told me, “I was trying to spell, ‘I don’t see very well’”.   Folks, this is the first time she’s ever admitted she doesn’t see well.   She said it so nonchalantly, but in the front seat of the car I almost got choked up.


Monday, May 29, 2017

Steps and Green Lantern

The Big Boy Update:
My son likes superheroes.   No, that’s not correct, he loves superheroes.   He wants to be a superhero and more to the point, he wants us to buy him things related to superheroes, specifically video games.   This, he’s been told isn’t happening but he is welcome to purchase games with money he earns.    He’s been finding out earning money is a slow and arduous process which involves something called, “work” and he’s gotten petulant about the entire ordeal—which hasn’t bothered my husband or me in the slightest.

Today his obsession is Green Lantern.   Our children’s favorite sitter was over for several hours today and she helped my son make a Green Lantern ring based on some steps my son found on a YouTube video.  Cardboard, a green marker and a glue gun were required but when I returned home he had a functioning (via his imagination) Green Lantern ring.  

This not being enough, my son wanted me to help him build another Green Lantern ring by following another YouTube video using Lego pieces.    I sifted and plowed through all our pieces until I found the fifteen specific ones he needed.   We didn’t have one in green, but that wasn’t a problem my son informed me because he could just color the yellow piece green using a sharpie.    Five minutes later the yellow piece as well as my sons fingers were indeed green, enabling us to continue with the project.

Now, armed with not one but two Green Lantern rings, my son is an imaginary deadly foe in our household.

The Tiny Girl Chronicles:  
My daughter is currently very blind.   She can’t get to our next door neighbor’s without help because she gets turned around in open spaces.   Her peripheral vision is completely gone with the blocked right eye due to scar tissue (and questionable function) and the hematoma in her left eye blocking most of her field of vision.   But she’s accommodating.

She wanted to go to the swings in the back yard today.   I took her hand and walked out onto the porch and watched when we got to the steps.   She had let go of my hand after carefully feeling forward with her feet to find the start of the first step.    Then she progressed rather quickly down the steps to the bottom.  

I asked her, “do you know how many steps there are?”   I didn’t, I’d never bothered to count because I rely on my vision to tell me when I’m reaching the last step.   Without hesitation she responded, “seven”.   And yes, there were seven steps.    She’s coping and adapting in ways we don’t even appreciate as fully sighted people.   Every day she amazes me.  

Sunday, May 28, 2017

Lenamade Stand

My daughter still insists on pronouncing ‘lemonade’ as ‘len-a-made’.   I’ve given up trying to correct her so today we had a Lenamade Stand instead of a Lemonade Stand.    My son had the idea a while back when he wanted to buy something and didn’t have enough money.   He first wanted to have a yard sale (he still does) including selecting toys of his he’s ready to sell.   When he found out that was a more complicated venture he settled on a lemonade stand instead.

I’m not sure how much money they thought they were going to make, but they were both interested.    We had two lemons last week and both children decided that was a clear sign we were ready for lemon-based commerce so I went back to the store, got a stack of lemons and told them we’d do it this weekend.

We had planned on tomorrow but real estate is commonly busy on holiday weekends and tomorrow got booked so today was the day.   My daughter and her good friend, Madison from next door, made two signs to put on our little child’s table.  They were colorful.   Lots of stickers were used.  Both girls liked their poster more than the other’s, which is interesting because my daughter couldn’t see either one at all.   But no matter, we had a table, chairs, a sign and were ready excepting the lemonade.

My husband got home and said he was thinking later in the afternoon and hey, wouldn’t it be nice to make cookies too?   He went back off to do some work while my daughter and I made brownies with cookies mixed in (terribly delicious, thank Duncan Hines).   Then we got to the lemon squeezing.

My son was busy he told us.   Was only interested in the bit where the sugar was added into the lemon juice and would it be possible to call him down when we got to that portion of the lemonade making?    I told him yes, but he ventured down early and ended up being a pretty big help in the whole process, telling his sister when she’d, “killed it” meaning when she’d gotten every last drop of lemon juice out of a particular half-lemon.

Lemonade chilling and brownie cookies cooling, we waited for my husband who got home and posted on our neighborhood Facebook page that our stand was open.    The children were pretty excited although their mood waned when they got hit with the hot heat of the day.    One bucket of ice later and they were renewed.

We were out a bit over an hour and had some friends and neighbors stop by.   We closed shop when we sold the last of the lemonade and the children got to eat the last two cookie brownies.    They counted their money ($4.20 each) when they got home.   I’m not sure what their plans are yet but I’m sure I’ll hear very soon from my son who’s wish list is longer than Route 66 has miles.

The Big Boy Update:  My son decided it would be good to get the playdoh out and make weapons and gear for his Lego characters.   He was upstairs for over an hour making all sorts of additions to his characters.   They’re drying in, on and around the figurines now.   I’ll find out tomorrow what it all means.

The Tiny Girl Chronicles:  Roller skates.   That’s right, roller skates.   My in-laws gave my daughter roller skates two years ago for Christmas.   They bought them for her before she lost her sight and we didn’t know what her outcome visually would be so they gave them to her that Christmas.   She hasn’t spent much time with them but lately, in the past two weeks, she hasn’t stopped talking about them.   Today she’d had enough—she had to roller skate.   She was good at it, she told us.   She didn’t need our help and could we please just get them out of the garage from the shelf she couldn’t reach.   All day she put them on and off.   She put on the helmet and the knee protection and the wrist protection and she went all over the main floor—again and again.   She loves it.   She wanted me to leave it all out so she could go again tomorrow.    She had so many pratfalls today I think I’m going to have to take her to the chiropractor next week to make sure she’s okay.    But she’s having fun and she’s not bored and for a child who can see almost nothing, that is a very good thing.

Saturday, May 27, 2017

Tired

I have been tired all day.   I’m so tired I don’t even want to be writing this blog post right now, preferring rather to be in bed.   I didn’t get out of bed until late, slobbed around all morning and then sat in a chair at our friend’s house this afternoon at the party we attended.  I don’t think I’m sick, but I can’t determine why I’m so tired.   I’m not missing sleep, I’m fond of getting a good night’s sleep.  

Perhaps tomorrow maybe I’ll be extra energetic to counterbalance today.

The Big Boy Update:  Our neighbors came to the door this morning to pick up something.   My daughter answered the door and decided to tell them, “we’re not going to school on Monday because it’s sensorial day.”   I told her I thought she meant, ‘Memorial Day’ to which she said, “oh, yeah”.    She knows the word ’sensorial’ because there are types of work in her Montessori classroom that fall under the category of sensorial.   She’s likely been heard that word far more times than she has the word ‘memorial’.

The Tiny Girl Chronicles:  We were riding down a road windy road going fairly quickly with the windows down.   My son yelled out, “incoming earthquake!”  When I asked if it was because of how the car was moving he said no, it was just an earthquake, that was all.

Friday, May 26, 2017

Public or Private School?

We got a letter in the mail yesterday with the public school assignment for my daughter for next year. Typically this wouldn’t be complicated because we already know what our base school is.   However with my daughter vision she needed an Individualized Education Program which deemed her needing the services of a, “program school” that served the needs of visually impaired children more specifically.

Within the county there are two elementary schools that are VI specific and there was one of the two we were hopeful we’d be assigned to—and we got the school assignment we were hoping for.   Only we’ve run into another quandary now.

One of the reasons we wanted to send my daughter to a program school was the amount of expertise available to help her with her sensory impairment.   This school year there are four VI students at the school and four VI teachers.   That’s a pretty impressive ratio.   The other main reason would be for my daughter to be around other visually impaired children.   And that’s where we ran into the snag.

Because while there are other blind children at the school, none of them are in the class she would be in and there is zero overlap in their schedules, and that’s a disappointment.    That means we’re considering having my daughter stay at our current private school and supplement her education there with VI teachers brought in during the week or have her attend the public school, even if she won’t interact with other blind children.

We’re trying to contact one other family we’ve met before that also might have their child attend the same program public school.   If their daughter is in the same class next year it would be a good thing.    We’ll hopefully find out soon.

The Big Boy Update:  My son was mad at me the other day.  He asked me if I wanted to die, because he had put dynamite all around the house to blow up for when he didn’t get his way.

The Tiny Girl Chronicles:  My daughter can’t see enough to go next door to see if Madison is home.   This is really sad to me.   She could do it easily before because she had enough peripheral vision to get a gauge on which direction she was going.   Now she can’t tell and with her cane training incomplete it’s like walking in a large open space not knowing how much farther you have to go or if you’re even going in the right direction.

Thursday, May 25, 2017

Out of Control Adults

There’s a double rainbow visible from our porch right now.   It’s one of those strange spring days where it rains when the sun is shining.  The children have been running in and out of doors both to escape the rain and to experience it by getting wet while standing barefoot on the grass.

My son seems to be in a good mood, which is a good thing because he’s been having some trouble lately.   We had an appointment for him to see our play therapist this afternoon.   When I picked him up his teacher said we needed to have a quick discussion and thus followed a story where my son didn’t get to sit with the person he wanted to for lunch, so he told him he was going to stab him.

Kate, my son’s teacher, knew he was going to see Dhruti for therapy and told me additionally that my son had been very off all week.   On the way in the car I texted Dhruti a quick summary (my husband was driving) and she responded she would see if it came out in the session.

When we picked my son up I was surprised at what she had to say.   I was expecting her to say my son was worried (about his sister), concerned because he’s leaving his class next year and has been doing visitations to his first grade classroom, not able to handle the difference in schedule since his sister was in Detroit for several days and there had been a possibility they would stay for longer.

It wasn’t that at all.  He is apparently seeing a lack of control from the adults around him.   His perception is the adults should keep things in order around him and that just hadn’t been happening lately.   But what does that mean?   To be honest, I don’t really know because I only had two minutes to get a quick conversation in with Dhruti before her next appointment.

Some things have changed in my son’s world recently, most notably his favorite teacher had to leave school unexpectedly.   He was very attached to his teacher and while the new teacher is both capable and very lovely, it’s a change for him.    He not only has one new teacher but there is a teacher change mid-day and he has a second teacher in the afternoon.    So school may seem a little out of control for him.

And what about us, as parents?   Are we out of control?  Well, I did lose my temper at both children this morning but I’m wondering if it’s more about his sister’s eyes.   We have told the children countless times that the doctors are going to help her see better.   And yet things just keep getting worse.   Has he lost faith in the adults around him, wondering if we’re really qualified to do our jobs?

His behavior, while seemingly not related, is a consequence and a reaction in which my son tries to control things and when that fails, he gets upset (and apparently wants to stab people).   I need to get back up with Dhruti so we can understand how to help ameliorate his feelings and try to regain his confidence in us as adults.

The Big Boy Update:  My son has more faith in me as a driver than he does our car’s autopilot.   Every time I turn it on it makes a double beep sound.   While my daughter is delighted that the car is driving itself, my son tells me in a worried voice, “mom, no, you have to hold onto the wheel”.

The Tiny Girl Chronicles:  My daughter was eating a snack today with the door to our deck open and a breeze blowing gently in.   She said, “we got time.   We’re going back in time.”  I asked her who’s going back in time and she replied, “no, not really we have a thyme plant outside on the deck.”