Wednesday, March 31, 2021
Need More Cowbell
Tuesday, March 30, 2021
Framing The Picture
My daughter is having her picture and a comment added to the media for a company that makes 3D printers for children. Getting a picture to the company has been a bit of work for multiple reasons but we got it done today and tomorrow the picture and comment goes live.
I had to get my daughter's buy-in on this whole picture and video thing. She helped, but she doesn't want to be shown just because she's blind. So I deemphasized that part. Once she decided to help, she sort of got into it.
What surprised me was how little she knows about some things. I was trying to set the shot up so I could get her standing beside the little ToyBox printer. I had to explain how I wanted both of them in the picture. Then I had to tell her t face a certain way so she didn't block things.
She was looking at the little mini planter pot a face on the front, including glasses. I had to tell her to stop looking at him so I could get him in the picture. If what I just wrote doesn't make sense, it's because my daughter was "looking" at him with her fingers. She moved them away from the facial features on the front of the printed little planter pot and I started to try and make her laugh.
You have to try and make her laugh, because her forced smile is, like so many other children's, awful. We got some pictures and she even did a little video clip that I sent to the company. I think she enjoyed helping out, even if it kept her from the pool for a bit this morning.
The Tiny Girl Chronicles: My daughter is going to peel maybe tomorrow. This week for certain. This was a bad burn. She's blistered all along the tops of her arms and shoulders and is in a lot of discomfort. If you're thinking about lecturing me, don't bother, I've been lecturing myself since Monday I've been so upset about it.
The Big Boy Update: My son knows how bad his sister feels with her burn and yet today he decided to take his shirt off late afternoon and run around without putting any sunscreen on. I don't know if now I have a second child burned. I hope he stayed in the shade or wasn't out for long in the sun.
Monday, March 29, 2021
The Fanfare
Sunday, March 28, 2021
The Sun Miscalculation
My daughter likes water. She would gladly spend the entire day in the backyard pool at Nana and Papa's house. This morning she was up early and had a breakfast of fruit and freshly made pancakes from Nana. The minute she had finished eating, she asked if she could go into the pool.
She put on her swimsuit from the night before and got into the hot tub. I moved my breakfast outside and then went over beside her. Her brother came out shortly, put on his swim trunks, and then they just took over, playing with each other, screaming, laughing, playing games, having fun.
I had to go inside to get my swimsuit on so I told the children to make sure each other was safe and promptly got stuck inside for a while. Other people went out and I did make it back outside in a bit, after taking care of the dog.
It wasn't until lunchtime when I suddenly realized I never put sunscreen on them. And worse yet, they weren't long sleeve swim shirts. We fixed the situation at that point, but the damage had been done, literally.
My daughter did the screaming bloody murder thing while she had aloe vera lotion and Solorcain. She is now chilled from the sun and is under a load of blankets. It's always the first day in the sun that you forget to put sunscreen on, no matter how early it is, even though the sun isn't high enough to shine on you. Forgetting can hurt.
The Big Boy Update: My son has worn his bathing suit on backward for the past two days. He turned them around once, but he seems to like them on backward. Somehow, they fit. He's so thin right now as he starts to grow.
The Tiny Girl Chronicles: My daughter walks very carefully around the pool so as to protect herself. She still got hurt a half dozen times today, but she brushed them off. She can play games with her brother and just go with all the visual things he talks about. I don't know how she does it, but for a lot of the day today when I saw her playing in the water, I didn't think about her blindness, watching out to make sure she doesn't get hurt and calling out in time to stop her if needed.
Saturday, March 27, 2021
You Can't Get There Any Faster
Friday, March 26, 2021
Negative + Packing + Printer
Thursday, March 25, 2021
A Little Taller
Wednesday, March 24, 2021
please don't fall asleep...
Tuesday, March 23, 2021
Tylenol Makes Everything Better
Monday, March 22, 2021
A Fever That Wasn't
The children have been out of school a lot recently with symptoms that are in some way related to COVID-19, but aren't for them. When one sibling is out, we take the other child out too. Today, we were going to have two children back in school for the last week before spring break.
Only a teacher at my son's school became COVID-19 positive and the school decided to go remote for the remainder of the time before the break. That was one child down. This morning, things took an interesting turn.
I had dropped my daughter off at school when my husband called to say my son had a fever. Was it really a fever? He did a lot of tests with two thermometers to make sure we weren't being alarmist, but the temperature was rising quickly. My son was lethargic and had a stomach ache on top of the fever.
While I turned around to pick my daughter back up, my husband took my son to get a PCR test. When they got home, my son fell into a deep sleep on our bed with his fever managed by Tylenol. My daughter was told to not interact with anyone and I lay down, not feeling all that hot myself, although not having any specific symptoms like a fever.
I was certain we had COVID-19 as a family. Spring break in Florida was canceled. Where and how did my son get it and who might we have interacted with that we need to notify. Only late afternoon the tests came back for my husband and son: they were negative. The PCR test is highly reliable for negatives, especially if you're exhibiting symptoms.
So what does my son have and where did he get it? Will the rest of us get it? We just don't know. The pediatrician said to monitor him and call in the morning with an update. He doesn't have earaches that would indicate an ear infection. He has a bit of an upset stomach, but not enough to be worried about appendicitis and his throat isn't sore. Allergies don't present with fever and he has no other allergy symptoms.
Any other year he would just have a bug that was going around. This year, things are much more serious when you get sick.
The Big Boy Update: My son lay in bed all day. I stayed with him some of the time. He was calm and sweet. It was sort of nice spending time with him, even though he was sick.
The Tiny Girl Chronicles: When I picked my daughter up from school she said, "I was really hoping to get to see some friends today at school."
Sunday, March 21, 2021
Always Questioning
Saturday, March 20, 2021
When Did I Change?
Friday, March 19, 2021
Naps
Thursday, March 18, 2021
Illness or Allergy
Here's the rundown and where we got to where we are now. Yesterday, my daughter said she had a sore throat. Her ear(s?) were also itchy, so much so that she'd scratched them(it?) raw. When asked, she would downplay and minimize everything but mid-morning we decided to go get yet another COVID-19 test for her.
Last night, the tests for her, my husband and me, all came in negative. Today, her symptoms are worse and she's afraid we're not going to go get to see Nana and Papa for spring break (nine days away). We decided to keep the children home tomorrow out of an abundance of caution. Even though we're fairly certain it's something other than COVID-19.
It's starting to be a false spring with the recent clement weather we've been having. I've started getting some fierce allergies which include itchy eyes, throat, and ears. I also have some drainage, but not to the extent my daughter has been having.
My daughter's voice has gotten raspier and raspier as the day has worn on, while also complaining of lots of drainage down the back of her throat—something that can cause hoarseness. Is it allergies? She has never had a single allergy, one of the good things she has going for her medically.
If her symptoms aren't better in the morning, we may take her to the pediatrician to see if it could possibly be anything else.
The Big Boy Update: My son told me tonight he couldn't possibly get his book read by our trip, which means he won't have screens at all while we're there. I told him he possibly could, that it's been a month since he lost screens. Four-and-a-half weeks, he corrected me.
The Tiny Girl Chronicles: In preparation for going to visit Nana and Papa my daughter and I got pedicures today. She got olive green that sparkled, "because Nana loves green," she said.
Wednesday, March 17, 2021
Crystal Game
My son still is resisting reading that one book he needs to read in order to get screens back. He had said at the beginning of all this that he was never going to do screens again. He can be very dramatic, like all children when they're upset and not getting their way. But as time goes on, he's not even trying, and while that's odd, it's not been a bad thing at home.
He has taken a renewed interest in drawing and his skills are increasing every week. After school, if his friend Rayan can't play in the yard, he goes to the bonus room, turns on an audiobook, and gets to work on something intricate or game-related. There are a lot of game-based drawings he's been doing.
Tonight, when I found him after dinner, he had been working on drawing up a game layout he had created on the floor with the crystal pendants he, his sister, and two friends got from Amazon for an astoundingly reasonable price. These crystals have been the source of many hours of play. Tonight, they were each the next step in the game, room in the dungeon, level to pass, spell to learn (he was non-specific when I asked but I think it's along some or all of those lines).
Here's what he laid out, nicely organized by color. He created and then precisely cut one square sections from his graph paper and laid out all the spaces. The LEGO pieces mean something as well. He told me you start at one and then showed me how, if you got to one of the end sections, you'd be able to take shortcuts. He was going to work on that next, but he had it all in his mind.
The thing that made me sad was he had to clean it up because his sister has class at home tomorrow and she was going to inadvertently step all over it. He understood and then copied everything down on another sheet before going to bed.
The Big Boy Update: My son was interested in showing me the game he was planning after school. I asked if there was anything I might have that I could contribute to the game. He wasn't sure but when I reminded him of the crystals I had kept in a tiny drawer in the craft room, he said he would like them. I'm glad I mentioned them because he created an impressive layout and game plan with them.
The Tiny Girl Chronicles: One of the students in my daughter's class has COVID-19. Her teacher and all students who sat near him have been sent home for two weeks or until after track out. We're fortunate in that my daughter was at home after the headache incident last week while all this was happening. Still, to be safe, we got another COVID-19 test today. That's three tests in a week for my daughter. One that was the wrong kind and would not be accepted by her school, the second that was and then today's in the case for any reason she was exposed the last day the other student was at school but she wasn't positive when tested.
Tuesday, March 16, 2021
Scratch and Mess
Monday, March 15, 2021
The Cotton Candy Event
Sunday, March 14, 2021
The Last Memory
Saturday, March 13, 2021
Multi-color Printing
Friday, March 12, 2021
I've Been Work'in On A Project
Sing that to "I've Been Workin' On the Railroad" because that's the song that's going through my head in relation to this project I've been working on. Also, if you could please pretend it's yesterday and I wrote this before crashing to sleep early last night, I'd be greatly appreciative.
I'll sum this up with the children and their activities of late and then write about the project for today, I mean tomorrow's post.
The Big Boy Tiny Girl Playing Together Days: My son is still refusing to read Malamandar, the book he needs to finish in order to get screens back. This is fine with me, although my husband and I are really hoping he finishes before we head to Florida to spend time with my in-laws over the upcoming spring break. As a result, both of my children have been doing a lot of playing together. As a general rule, this is something my daughter would love to happen all the time but doesn't that much because my son is busy with his own things, some of which include screens. With the lack of any digital time though, they've been doing all sorts of things together with my son including my daughter in his play. She's loving it and I think he's enjoying spending time with her too. They were going to have a sleepover in the bonus room and got their sleeping bags ready but my son decided at the last minute to go to his bedroom. My daughter wasn't that disappointed. She fell asleep to the latest of her audiobooks with her favorite, "stufties" (stuffed animals) surrounding her.
Thursday, March 11, 2021
The Bridge Wreck
My non-COVID-19 positive daughter was in tow with my husband and me as we went to check out a piece of property. She didn't want to go and pitched a fit but we told her if she was home from school, she had to go with us when we had to do work things. I wondered if she would like the location, knowing what I did about it.
It was multiple acres with a vacated house from the 1970s that had never been updated. When we arrived she wanted to know if there was a gate and upon finding there was, got out of the car to feel it and help open the old, metal frame. She launched down the gravel driveway with the dog following her. I gave her directions on a bit left or a bit right until we met her father at the house.
She wanted to investigate the house all by herself, finding all the rooms and doors. I tied the dog up and went in and answered all kinds of questions she had. There was a majestic large stone fireplace that spanned three floors, lots of rooms, and a pool table in the walk-out basement.
She followed her father upstairs to the second floor which had a bridge overlooking a view of the small pond across the large yard in the back. She yelled down to me, "It's an awesome view, mom." It's things like this that are so interesting to me. There was zero view for her. But I dutifully responded that she was right, the view was certainly beautiful when I had made it to the second-floor landing.
We went outside and I let the dog follow us around as we investigated the grounds. My daughter wanted to know what fun things there were around and I noticed a small metal bridge crossing the creek that flowed into the pond. We went over and I told her the planks had rotted away, but she could climb out on the rails and sturdy base frame.
She did so and was very happy, about to make it to the other side when the dog decided to follow her and jumped into what turned out to be body-deep muck to both follow my daughter as well as to get something to drink. She had stirred up the now dirty water so I had my daughter come carefully back while I sent the dog further into the pond to hopefully have some of the water clean her now-filthy legs and belly.
As my daughter exited the bridge she said, "I love bridge wrecks. What else is fun?" She didn't want to visit the boathouse but perked up when I told her there was an old swing set. I couldn't take her there until I got the dog, who had now decided to sink into the water to cool off (it was over seventy degrees and sunny—she was hot.)
My daughter decided it wasn't all that bad, going to see houses with us. I didn't want to tell her this house was quite the exception. To her, most houses we would look at as real estate agents, would be just a collection of uninteresting rooms to her.
I like that there's a bridge wreck
The Big Boy Update: I was going back over my notes that I take for blog post topics and I saw this one from last year when we saw my parents during which we celebrated my father's birthday. After singing the birthday song my son said, "Gramps, did you like blowing out the chandeliers?"
The Tiny Girl Chronicles: Chelsea, Reese's music therapist, was outside, playing her guitar while Reese jumped on the trampoline and tried to sing off beat intentionally as a challenge. She told Chelsea it wasn't hard for her at all because she just blocked out the music and did her own thing. She also added, "I like to be annoying,"
Wednesday, March 10, 2021
Potential Purgatory
Tuesday, March 9, 2021
Preparation and Taxes
Monday, March 8, 2021
Twelve Hours
Sunday, March 7, 2021
Blindfolded
I've been trying to reach my son. Trying to get him to see we're not favoring his sister over him. It's been hard to get through to him that some things we're just going to have to help her with. For instance, if she drops something on the floor, we need to encourage her to find it for herself. The skills she has learned to sweep in a pattern until she locates the item in a predictable pattern is a life skill for a blind person, not a punishment because we think she shouldn't have dropped the item. And yet when the dropped thing has rolled far away, it seems almost unfair to have her look for a long time, only to get dejected at not finding it—especially when she knows everyone around her can see exactly where the thing is.
My son believes we favor his sister in other ways. Some of this is only coming to light now, but he believes we spend more time with her. In a way, he's right. But it's because she asks, and asks, and asks to do things with us. She is bored and she loves to do things with people. She is a very social person. We feel bad for her that we say no as many times as we do. But to my son, he just sees that we're doing things with her more than him.
We try to do things with him, but he doesn't accept our offers much of the time. Prior to the, "No screens until you read three big books" standoff, that wasn't as apparent to him we think. He's now noticing more because he's experiencing boredom on some level as well, although he's been doing a lot of interesting drawing, LEGO, and creative work. He's also been receptive to having us do things with him more.
Tonight, I decided to try something to see if I could trigger some empathy in him. He and I were folding laundry in his room. I told him we were going to blindfold ourselves and see what it was like to do laundry blind, like his sister has to do so every week. Maybe, I thought, he would understand why I helped her with certain things and didn't with him. He wasn't seeing that even though I helped my daughter in some areas of her laundry, she had to do additional work in other areas, but this wasn't about that.
Greyson was happy about putting on the blindfolds. We set a timer for ten minutes and both sorted the laundry. And we did well. I was surprised, although not completely so. We did the easy part at just dividing up the laundry into piles of the same things like shirts, pants, socks, etc. My son wanted to do another ten minutes and I agreed. He told his sister about the plan and what we'd been doing and I fumbled down the hall to hang her shirts with a basket in my hands and a blindfold over my eyes.
I found her closet floor completely covered in soft things. I had only just cleared out the mess to get to the hangers by the time my son came to let me know the timer was up. I don't know how much of the message got through, but we're trying.
The Big Boy Update: My son played outside today with friends on the street. They all played well together and my son seemed to have a good time without trying to show off and control all the play. He likes to run the show, which not everyone enjoys, especially when he's forceful about his opinions of what everyone should be doing. I think it was a good day for him.
The Tiny Girl Chronicles: My daughter has learned how to make that pop sound you can make with your mouth by tucking your lips over your teeth, pressing down and then pulling them out quickly. She worked hard to figure it out, especially since she had to do so mostly on descriptions. She was showing off tonight and said, "It's amazing what the human body can do."
Saturday, March 6, 2021
Paging Mom and Dad
We love the Amazon Echos. We what feels like a slew of them in the house. My husband bought one before they were generally available way back when they were in beta testing mode. At that time the children's voices weren't understood by Alexa. It would infuriate them as they tried, again and again, to get her to understand them in their tiny, little voices only to have her ignore everything they said after her name. My husband and I would say the exact same thing and she would understand us on the first try.
Today, we've upgraded models multiple times, relocating the older versions to other, less-used locations in the house. At this point, most spots we spend time in, including the bedrooms, have their own Alexa communication device and Alexa not only understands the children, but she can also figure out what we're saying when more than one person is talking over you.
The technology can be very useful. And annoying.
You can reach someone by connecting to their location using, "drop in" which starts an open conversation with those two Echos just like double-ended speakerphone call. You can also send a message to all the Echos in the house. This is also nice when my husband wants to let us know dinner is ready. It's definitely useful when someone is hurt and we need to know. But it is also a way to pester parents when we don't want to be pestered.
Typical messages are along the lines of, "Mom (or Dad) can you come here?" We're starting to crack down on this, letting them know we're not going to even consider coming unless they let us know why—because it's usually something like, "she's touching me" or some other equally important situation only we can handle.
Tonight my son announced, "Mom and dad, you need to come up here NOW!" My husband and I looked at each other and I responded, "Why?" My daughter was in my son's room and he didn't want her there. So we needed to come up "NOW" to handle it. We didn't budge. The number of additional interruptive messages we got after telling them we were sure they could work it out themselves was annoying, but hopefully, they'll start to get the message that we're not interested in being paged for trivial reasons.
The Big Boy Update: My son wanted to go outside with his socks on today. I told him not to. Twice. Firmly. I found the socks on the floor at dinner wrong-side out. I turned them out and found them caked with leaves and dead grass. My son had to clean them off. If he wants to do that in the future, he can use his own money to buy socks and then throw them away, because they're not going in the laundry, I told him, so they can get leaves all over our clothes.
The Tiny Girl Chronicles: My daughter has taken down swings on the play set on multiple occasions to stop other children (whom she feels don't like her or won't let her play with them) multiple times. This is happening when there are children in our back yard when our children aren't outside, something we've allowed as our neighbor's children need to get out and not go crazy inside too. But my daughter has been around in other areas when this has been happening and she's not being nice because I think she's afraid of not being accepted—so she's making sure she's not accepted by dropping the swings. She is not allowed to do it again or all the swings will be put away, I told her. She was horrified because then she couldn't use the swings. Good, I told her. So don't remove the swings from the set and leave them on the ground anymore.